A guide for you and your family
This handbook about Adolescent Idiopathic Scoliosis (AIS) was written for you -- to guide you as you start this journey; and by you -- from the experiences and ideas of people who have travelled this road ahead of you. Having had the opportunity to care for many teens with Adolescent Idiopathic Scoliosis, we recognize that each family approaches this diagnosis in their own way. We hope that the information provided will help you in your journey through scoliosis treatment.
A second version of the handbook is in production, and will take into consideration all feedback that has been received from physicians, patients and their families, in order to create the most up to date and complete educational resource on AIS and AIS treatment options. HSGF’s goal is to have the handbook translated into seven languages and have the handbook distributed around the world to educate AIS patients. In order to meet this goal, the HSGF is looking for your support! If you believe in this mission and want to help support the goal of creating and distributing the AIS Handbook worldwide, please consider a donation to HSGF. Please click on the ‘Donate’ button and your donation can be designated specifically for the production of the AIS Handbook.
To view our first handbook, Please click on the image above or click here.
Sugguestions on how to navigate through treatment
1. When you receive unexpected or unwelcome news at a doctors visit it can be difficult to then focus on further information. Please come back to talk when you’ve had time to think about the visit—it is important that you get all of your questions answered.
2. Write your questions down.
3. Educate yourself…. knowledge empowers you and will allow you to make informed decisions
4. Talk with one another—parents, children and medical staff.
5. Listen to each other—parents, children and medical staff.
6. Work together to make decisions and to develop a trusting relationship.
There are a number of website that provide reliable information. These includes: